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Megan Golden

Patient ResourcesPatient Stories
October 15, 2018

Kayla-Ann Keagy: Courage Award Recipient Tells Her Story

At the 2018 LA Party for a Cure fundraising event, Mission: Cure had the honor of awarding the Courage Award to four remarkable young individuals living with chronic pancreatitis. While the event as a whole was a verifiable success, raising over $150,000 to support the search for a cure, it was the stories of Matthew Musto (aka blackbear), Kayla-Ann Keagy, Diana Miranda, and Diego Miranda that made the biggest impact of the night. We are now sharing their stories of how chronic pancreatitis has affected their lives and the hopes they hold for the future, as well as updates from…
Megan Golden
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Diana and Diego Miranda
Patient ResourcesPatient Stories
October 12, 2018

Diana & Diego Miranda: Courage Award Recipients Tell Their Stories

At the 2018 LA Party for a Cure fundraising event, Mission: Cure had the honor of awarding the Courage Award to four remarkable young individuals living with chronic pancreatitis. While the event as a whole was a verifiable success, raising over $150,000 to support the search for a cure, it was the stories of Matthew Musto (aka blackbear), Kayla-Ann Keagy, Diana Miranda, and Diego Miranda that made the biggest impact of the night. Over the next few days, we will be sharing their stories of how chronic pancreatitis has affected their lives and the hopes they hold for the future,…
Megan Golden
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Chronic and recurrent Acute Pancreatitis Pationt Prespectives
Blog
July 26, 2018

Preliminary Results of Patient Survey and Continuing Project

As many of you may know, Mission: Cure recently launched its first patient survey to gain real-world patient perspectives on living with the disease. Although the survey is ongoing, and we ask that patients who have not completed the survey take a moment to do so, we are also excited to share some preliminary insights that we have gathered from the first 145 responses.  We are excited to present a white paper report on the results of these first responses that was shared with researchers, clinicians, and FDA authorities at the PancreasFest conference in Pittsburgh, PA earlier this week. The…
Megan Golden
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Mission: Cure - Contribute by completing survey
Blog
July 13, 2018

Introducing Mission: Cure’s First Patient Survey

Here at Mission: Cure, we strive to bring the patients’ voices to the forefront of our work. Our mission is to cure chronic and recurrent acute pancreatitis by using an innovative financing model to incentivize research and development. We are asking for you, patients and caregivers, to take a couple of minutes to fill out our patient survey. We believe that the needs and perspectives of you - someone who lives with pancreatitis - should be placed at the center of finding cures. We want researchers to know what improvements you most want to see so that they can identify the…
Megan Golden
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NewsNews
July 11, 2018

N=1 Drug Discovery Pact: Mission: Cure’s New Partnership with Perlara

Mission: Cure believes that new innovations in medical research are key to achieving our goal of curing chronic pancreatitis. For this reason, we strive to leverage and support advances in genomics and precision medicine and aim to collaborate with forward-thinking and mission-driven organizations. Today, we are excited to announce our partnership with Perlara, a rare disease drug discovery platform company working with highly motivated families, foundations and drug developers. Together, we have formed a n=1 drug discovery PerlQuest pact with the goal of discovering promising compounds for rapid testing in patient-matched organoid models of pancreatitis to get treatments to patients faster. In…
Megan Golden
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