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Exocrine Pancreatic Insufficiency
March 25, 2019

EPI and Pancreatic Enzymes: Expert Doctor Answers Patient Questions

Dr. Steven Freedman of Beth Israel Deaconess Medical Center and Harvard Medical School Dr. Steven Freedman, MD, Ph.D., a worldwide expert on pancreatic disease and cystic fibrosis, presented on Mission: Cure’s Pancreatitis Patient Webinar on Exocrine Pancreatic Insufficiency (EPI) and Pancreatic Enzyme Replacement Therapy (PERT). EPI is one of the symptoms of pancreatitis. For a more comprehensive overview of EPI, please read this article.  Pancreatic enzymes are a confusing but critically important part of chronic pancreatitis treatment. If you missed the webinar, you can watch it here:  We had so many questions during the webinar that we could not get…
Linda Martin
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Hereditary pancreatitis patient, Christine Cataldo, with her family.
Patient Stories
September 5, 2018

Living with Pancreatitis: The Importance of Hope

Interview with Chronic Pancreatitis Patient, Christine Cataldo  In the summer of 2018, Mission: Cure’s intern, Gabriela Gil, sat down with Christine Cataldo, a patient volunteer with Mission: Cure, to learn more about Christine’s experiences living with chronic pancreatitis. Diagnosed with pancreatitis linked to the PRSS1 genetic mutation in 2002, Christine shared stories how her condition was identified, discussed her family’s relationship with the disease, and emphasized the importance of patient advocacy in pancreatitis research: (more…)
Gabriela Gil
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Stephen Pandol, MD, is Director of Basic and Translational Research at Cedars-Sinai Medical Center
Alcohol & PancreatitisBlogGenetics
June 5, 2018

Pancreatitis and Alcohol: What’s the Real Connection?

I’ve been researching and treating chronic pancreatitis for decades, so I know firsthand what a complicated disease it is and how many unknowns remain. Answers are finally beginning to emerge, but the research is still very preliminary, underscoring how much more we need to learn. It has become increasingly clear that chronic pancreatitis (CP) is caused by multiple factors. Those factors vary from patient to patient and in how they interact with each other. Stephen Pandol, MD, is Director of Basic and Translational Research at Cedars-Sinai Medical Center and Professor of Medicine, University of California Los Angeles. His career has…
Dr. Stephen Pandol
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Pain ManagementPediatric Pancreatitis
November 21, 2019

Managing Chronic Pain in Pancreatitis

Key points: •   Chronic pain from pancreatitis takes a major toll on patients and their loved ones. •   To effectively treat chronic pancreatitis pain, we need to address the symptoms as well as the impact of pain on patients’ lives.  •   One piece of the solution is self-management, which involves education, lifestyle changes, pain coping skills, and emotional and social support. •   Computer and smartphone technologies can be used to teach self-management to patients who lack access to interdisciplinary pain facilities. •   There are self-management apps specifically for pancreatitis pain and clinical trials for children and adults to determine how…
Omar Chioua
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Depicting a child suffering from chronic pain on a couch.
NewsNewsWebinarsWebinarsWebinars: Pain Management
September 6, 2019

Pancreatitis and Chronic Pain: How Can I Manage?

On this Mission: Cure webinar, Dr. Tonya Palermo discusses pain self-management techniques If you or a family member have chronic pain from pancreatitis, Mission: Cure’s webinar with Dr. Tonya Palermo will be helpful as it explores the impact of chronic pain on children, adults and families dealing with pancreatitis. “Chronic Pain and Pancreatitis” was selected as the topic for this webinar in Mission: Cure’s ongoing Patient Education Webinar series based on input from patients and families who identified pain as their number one pancreatitis-related issue. Our speaker : Dr. Tonya Palermo University of Washington, Psychologist, Professor of Anesthesiology and Pain…
Omar Chioua
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Webinars: Pain ManagementWebinars: Pediatric Pancreatitis
October 28, 2019

Pancreatitis Pain: A Medical Approach with a Patient Focus

Pancreatitis Pain: A Medical Approach with a Patient Focus If you or a loved one suffer from chronic pain from pancreatitis, you won't want to miss the second in Mission: Cure’s series on managing chronic pancreatitis pain. The first webinar in this series discussed a psychological approach called pain self-management. In this webinar, Dr. Steven Freedman discussed a range of medications and medical procedures that have been successful in reducing or managing pain, including: ·      Analgesics ·      Medical Marijuana ·      Uncoated pancreatic enzymes ·      Neuropathic pain treatments ·      Hormones for women ·      Trans-cranial Magnetic Stimulation Dr. Freedman shared his patient-centered, problem-solving approach to finding solutions that…
Omar Chioua
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Dr. Asjbørn Mohr Drewes, MD, PhD
BlogBlogBlogBlogPain ManagementPatient ResourcesPatient ResourcesPatient ResourcesPatient ResourcesPatient ResourcesPatient ResourcesPatient ResourcesPatient ResourcesPatient ResourcesPatient Resources
September 27, 2018

New Guidelines for Managing the Pain of Chronic Pancreatitis

Dr. Asbjørn Mohr Drewes, MD, PhD, is a widely-recognized expert in gastroenterology and pain, especially in diseases of the pancreas and oesophagus. Acting as both a clinician and researcher, he has authored 507 peer-reviewed articles, book chapters, and reviews, and is a frequent speaker at international conferences. He is currently the Director of Mech-Sense and Center for Pancreatic Diseases at the Aalborg University Hospital in Aalborg, Denmark. Chronic pancreatitis (CP) is a poorly understood disease, to the immense frustration of patients, clinicians, and researchers. There is good news: consensus guidelines on chronic pancreatitis pain have been developed by an international…
Dr. Asbjørn Mohr Drewes
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Exocrine Pancreatic InsufficiencyNewsTopicsWebinarsWebinars: Exocrine Pancreatic Insufficiency (EPI) & Pancreatic Enzymes
March 8, 2019

Pancreatic Enzyme Replacement Therapy – New Information for Pancreatitis Patients on Treating EPI

Busting the Myths about Pancreatic Enzymes for Pancreatitis and EPI Dr. Steven Freedman, MD, Ph.D., a worldwide expert on pancreatic disease and cystic fibrosis, presents Busting the Myths about Pancreatic Enzymes for Pancreatitis. In this webinar, the fifth in Mission: Cure’s Patient and Family Webinar Series, Dr. Freedman explains: What causes exocrine pancreatic insufficiency (EPI)? How is EPI diagnosed and treated? When should you take PERT and how do you calculate the correct dose? Is PERT helpful in treating the pain of chronic pancreatitis? How does PERT affect patients with diabetes? What new developments are in the pipeline to treat EPI? Dr.…
Megan Golden
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Diana and Diego Miranda
Patient Stories
October 12, 2018

Diana & Diego Miranda: Courage Award Recipients Tell Their Stories

At the 2018 LA Party for a Cure fundraising event, Mission: Cure had the honor of awarding the Courage Award to four remarkable young individuals living with chronic pancreatitis. While the event as a whole was a verifiable success, raising over $150,000 to support the search for a cure, it was the stories of Matthew Musto (aka blackbear), Kayla-Ann Keagy, Diana Miranda, and Diego Miranda that made the biggest impact of the night. Over the next few days, we will be sharing their stories of how chronic pancreatitis has affected their lives and the hopes they hold for the future,…
Megan Golden
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GeneticsTopicsTopicsTopicsTopics
January 11, 2019

Genetic Testing for Pancreatitis: What We Know Now

Dr. Mark Haupt, MD is the Chief Medical Officer of Ariel Precision Medicine, a company that provides digital health and genomics solutions for complex disorders, like pancreatitis. Dr. Haupt is a Pediatric Pulmonologist who has dedicated his career to helping patients with pancreatic disease through his work in academia, the pharmaceutical industry, and his current work with Ariel. As a researcher and clinician, I’m incredibly excited by advances in our understanding of pancreatitis and their potential to help pancreatitis patients. Pancreatitis patients suffer terrible pain, along with other symptoms, and are often frustrated at the lack of effective treatments. But…
Dr. Mark Haupt
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