Mission: Cure's most recent webinar is now online: Pancreatitis Pain: The Latest Medical & Policy Perspectives on Opioids Watch It Now! On this webinar, Kate Nicholson, J.D., a civil rights attorney, pain patient advocate, and expert on the so-called opioid or overdose crisis, and Dr. Eva Szigethy, a leading UPMC psychiatrist focused on the management of chronic pain and psychotropic medication management in patients, discuss: Barriers to care for patients who use opioids The opioids policy environment and how patients can use recent policy changes to self-advocate Pain treatment options, including opioids Dealing with anxiety and depression Dr. Eva Szigethy is a professor of psychiatry, medicine and pediatrics at…
November 21, 2019
Managing Chronic Pain in Pancreatitis
Key points: • Chronic pain from pancreatitis takes a major toll on patients and their loved ones. • To effectively treat chronic pancreatitis pain, we need to address the symptoms as well as the impact of pain on patients’ lives. • One piece of the solution is self-management, which involves education, lifestyle changes, pain coping skills, and emotional and social support. • Computer and smartphone technologies can be used to teach self-management to patients who lack access to interdisciplinary pain facilities. • There are self-management apps specifically for pancreatitis pain and clinical trials for children and adults to determine how…
September 27, 2018
New Guidelines for Managing the Pain of Chronic Pancreatitis
Dr. Asbjørn Mohr Drewes, MD, PhD, is a widely-recognized expert in gastroenterology and pain, especially in diseases of the pancreas and oesophagus. Acting as both a clinician and researcher, he has authored 507 peer-reviewed articles, book chapters, and reviews, and is a frequent speaker at international conferences. He is currently the Director of Mech-Sense and Center for Pancreatic Diseases at the Aalborg University Hospital in Aalborg, Denmark. Chronic pancreatitis (CP) is a poorly understood disease, to the immense frustration of patients, clinicians, and researchers. There is good news: consensus guidelines on chronic pancreatitis pain have been developed by an international…
March 8, 2019
Pancreatic Enzyme Replacement Therapy – New Information for Pancreatitis Patients on Treating EPI
Busting the Myths about Pancreatic Enzymes for Pancreatitis and EPI Dr. Steven Freedman, MD, Ph.D., a worldwide expert on pancreatic disease and cystic fibrosis, presents Busting the Myths about Pancreatic Enzymes for Pancreatitis. In this webinar, the fifth in Mission: Cure’s Patient and Family Webinar Series, Dr. Freedman explains: What causes exocrine pancreatic insufficiency (EPI)? How is EPI diagnosed and treated? When should you take PERT and how do you calculate the correct dose? Is PERT helpful in treating the pain of chronic pancreatitis? How does PERT affect patients with diabetes? What new developments are in the pipeline to treat EPI? Dr.…
January 11, 2019
Genetic Testing for Pancreatitis: What We Know Now
Dr. Mark Haupt, MD is the Chief Medical Officer of Ariel Precision Medicine, a company that provides digital health and genomics solutions for complex disorders, like pancreatitis. Dr. Haupt is a Pediatric Pulmonologist who has dedicated his career to helping patients with pancreatic disease through his work in academia, the pharmaceutical industry, and his current work with Ariel. As a researcher and clinician, I’m incredibly excited by advances in our understanding of pancreatitis and their potential to help pancreatitis patients. Pancreatitis patients suffer terrible pain, along with other symptoms, and are often frustrated at the lack of effective treatments. But…
https://www.youtube.com/watch?v=dLrEmdmgaLQ&t=5s Pancreatitis is Often Caused by Genetics In November 2018, Mission: Cure hosted a webinar for chronic and recurrent acute pancreatitis patients on new genetic discoveries related to pancreatitis. It featured presentations by Dr. David Whitcomb of the University of Pittsburgh Medical Center and Dr. Mark Haupt of Ariel Precision Medicine, experts in pancreatitis genetics. The doctors answered many questions from patients, including: Do genetics cause chronic and recurrent acute pancreatitis? Who should get genetic testing? How will research on genetics help us find a cure? Mission: Cure and its partners are using new research on genetics to find pathways…
December 13, 2018
“Is Pancreatitis in Your Genes?” Webinar Q&A
We had so many questions during our webinar on the genetics of pancreatitis, which can be viewed here, that we could not answer them all during the session. We didn't want to leave questions unanswered, so here are Dr. Mark Haupt and Dr. David Whitcomb's answers to the questions we didn’t get to: (more…)
December 9, 2018
Curing Pancreatitis: It’s Time for a New Approach!
https://youtu.be/BOmLjiVIX6c On December 8th, Mission: Cure hosted an informational webinar for chronic and recurrent acute pancreatitis patients, their families and clinicians on their new approach to curing pancreatitis. It featured co-directors Megan Golden and Linda Martin, who gave presentations on the gap Mission: Cure is working to address, their innovative financing model, and how patients and families can get involved and help! Attendees gained unique insights to the projects Mission: Cure is spearheading to provide promising pathways toward effective treatments and cures. (more…)