Elizabeth (Liz) Jacobs is a clinical research professional living in the bay area with her husband Richard and dog Pippin. Following her PhD in organometallic chemistry (2014) she completed a post doc in chemotherapy drug discovery which catalyzed her interest in clinical research. In 2017 Liz was diagnosed with idiopathic exocrine pancreatic insufficiency and started PERT, which has helped her to live a relatively normal life. She transitioned to a role as a clinical research coordinator in a GI oncology department that allowed her to continue a career in clinical research and participate in patient advocacy. She currently works as a clinical researcher for a biotech company in the bay area. Her interests outside of work include running, rock climbing, backpacking and cooking. You can find her on Instagram at @achemistoncreon and @creoninthewild documenting her life with EPI.

Jane Schugel lives in Minnesota. Her daughter Ellie was diagnosed with chronic hereditary pancreatitis when she was 11 years old, and she had a total pancreatectomy with islet autotransplant when she was 12 years old. She has seen firsthand the toll this disease takes on a child and their family, and having support of others who have been through it is key, especially for a rare chronic condition such as pancreatitis. Given her experience, Jane is passionate about mentoring other pediatric pancreatitis families, especially since she lives in Minnesota where many families come to get care. She brings that experience and urgency to PCAB to help improve the care experience of other families.