These were some of the questions that we sought to answer as we spoke with providers, individuals  and caregivers of those suffering from chronic pancreatitis and recurrent acute pancreatitis.

Over the course of 35+ interviews, we listened to stories of excruciating pain, anxiety, and hopelessness as individuals and their families grappled with the medical system in search of a diagnosis or even just sufficient care. These conversations highlight  the immense impact of pancreatitis on the social, emotional, mental, and financial well-being of individuals and families –  challenges that are rarely discussed while managing the physiological aspects of the condition. 

We hope that the stories and themes noted in the report will inspire and spark an actionable dialogue with providers, payers, and other stakeholders to push for care practices that drive measurable improvement in patient outcomes and improve all aspects of their well-being and quality of life.