Developed Best-Practices Care Protocol for holistic pancreatitis care, vetted by top experts
OUR PROGRESS
6
companies are now working to develop therapies for pancreatitis after decades without progress
2,500
patients, caregivers, scientists, and advocates searching together for a cure
Developing Therapies
Improving Care
Engaging Communities
- Defined strategy to cure chronic pancreatitis within 10 years with input from key opinion leaders
- Identified 60 potential drug repurposing candidates that have evidence of action on pancreatitis targets
- Awarded Innovative Practices award for an international data science competition that generated 300 drug repurposing candidates
- Working with biotech Healx’s Rare Treatment Accelerator to develop a therapy for chronic pancreatitis
- Launched the patient-centered care strategy
- Documented and disseminated the lived experience of patients: Designing for Hope and Resilience
- Drafted specific care practices to improve patient outcomes and experience
- Established Patient Created Patient-Caregiver Advisory Board
- Articulated pancreatitis-specific patient outcomes
- Reached over 77,000 patients, caregivers, clinicians, and scientists
- Increased content volume and published content in Spanish, Arabic, and Hebrew
- Held patient-focused drug development meeting with FDA & contributed to Voice of the Patient Report
- Organized & led patient panel at National Institutes of Health (NIH) meeting to expedite therapies for pancreatitis