On June 19th of every year, we commemorate the liberation of enslaved individuals in the United States. In the last hundred years, the healthcare field has made great strides in innovation, yet many still receive poor and unequal care. Compared to their white counterparts in the United States, people of color have decreased access to innovative health treatments and standard care¹. Despite advancements in technology and science, patients of color are still more likely to have their pain taken less seriously and less likely to have their pain medically recorded accurately. Ultimately, patients of color are less likely to get...
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Volunteers Needed Precision Care Network is collecting nasal cells to support research focused on improving medical care for people who have been diagnosed with pancreatitis or are at high risk for developing pancreatitis. Donating nasal cells takes less than five minutes. Eligibility Must be 18 years or older and Have a pancreatitis diagnosis, or Be at high risk of developing pancreatitis Compensation You will receive $25 per collection for each nostril (up to $50.00) for your participation You may have the option to donate saliva Qualification To see if you may qualify, email research@precisioncn.org with the subject like, “Pancreatitis Research…
Picture from: National Pancreas Foundation Pancreatitis Externally-Led Patient-Focused Drug Development Meeting Mission: Cure was one of many patient advocacy nonprofit organizations that participated in the development of the very first Voice of the Patient Report, a months-long project led by the National Pancreas Foundation. In March, during the Patient-Focused Drug Development (PFDD) meeting, Co-Founder and pancreatitis patient Eric Golden shared his experience with pancreatitis before members of the United States Food and Drug Administration (FDA). PFDD meetings put patients' experiences at the forefront and give them a voice in the drug development process. Read the Report Mission: Cure's Belief in...
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What are the experiences of individuals suffering from chronic pancreatitis and acute recurrent pancreatitis as they seek care and support? How does this condition change the way that they go about their daily lives? If pancreatic patients could reimagine their ideal care experience, what would that look like? These were some of the questions that we sought to answer as we spoke with patients and caregivers of those suffering from chronic pancreatitis and recurrent acute pancreatitis.
Join us for a Night to Remember! You are cordially invited to our Moments of Hope 2020 virtual Party on October 29th, 2020 at 5pm PT/8pm ET. We hope you’ll join us for an inspiring and interactive evening to celebrate the strength and resiliency of our community and to raise funds to improve the lives of children and adults suffering from pancreatitis. In a year that seems especially lonely and dreary, we’ve created a virtual space where we can come together to meet new friends (and reconnect with old ones), have some fun and shine a light on the urgent...
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