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Sofia Garcia

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August 17, 2021

Moments of Hope 2021

Moments of Hope Celebrating Pancreatitis Warriors October 7th, 2021 5pm PT / 8pm ET JTVCeWNkX2NvdW50ZG93biUyMGlkJTNENDA0OSU1RA== What to Expect An interactive social hour and program where you'll get to video chat with participants in real-time and a virtual show featuring patient stories, games, and a live auction. How You Will Make an Impact Your donations contribute to all three of Mission: Cure's core programs designed to dramatically improve the lives of all pancreatitis warriors. Finding a Cure We are advancing new research and clinical studies for genetically-driven pancreatitis. With your support, we are closer than ever to finding effective treatments. Improving Patient…
Sofia Garcia
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News
June 17, 2021

Our Commitment to Diversity, Equity, and Inclusion

On June 19th of every year, we commemorate the liberation of enslaved individuals in the United States. In the last hundred years, the healthcare field has made great strides in innovation, yet many still receive poor and unequal care. Compared to their white counterparts in the United States, people of color have decreased access to innovative health treatments and standard care¹. Despite advancements in technology and science, patients of color are still more likely to have their pain taken less seriously and less likely to have their pain medically recorded accurately. Ultimately, patients of color are less likely to get…
Sofia Garcia
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BlogCare Framework
April 27, 2021

Care Framework

Last year, the American College of Gastroenterology (ACG) published clinical guidelines to provide an evidence-based practical approach to the diagnosis and management of chronic pancreatitis for the general gastroenterologist. We, at Mission: Cure, commend the efforts of the authors and believe that these guidelines are an important step forward for pancreatitis patients who continue to seek a diagnosis and treatment plan while suffering with pain, hopelessness, and poor outcomes.  (more…)
Avi Khullar
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Exocrine Pancreatic InsufficiencyPatient Stories
March 24, 2021

My Experience with Pancreatic Enzymes (PERT)

I read Liz’s blog and her journey with exocrine pancreatic insufficiency (EPI) resonated with my own experience. The one difference - since the diagnosis, seven years and counting - I continue to calibrate my enzyme dosage. Here is my experience with pancreatic enzymes. My first (diagnosed) acute pancreatitis attack happened in 1998 and I was diagnosed with chronic pancreatitis in 2013 following severe weight loss and multiple years living with digestive issues (such as dispersed and oily stools). When I began taking pancreatic enzymes in 2013 (without a formal diagnosis of EPI), I had no understanding of lipase, amylase or protease…
Sofia Garcia
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BlogBlogExocrine Pancreatic InsufficiencyExocrine Pancreatic InsufficiencyPatient Stories
March 24, 2021

Pancreatic Enzymes and Pancreatitis: My Experience

Road towards a pancreatitis diagnosis #Creoninthewild Hawaii My journey with pancreatitis started when I was about 10 years old. Throughout my years in school (elementary, middle and high school), I was misdiagnosed with a “sensitive stomach.” My pain was not taken seriously by doctors. I was sent to several counselors while I was in college because, despite my symptoms, doctors believed that the pain was in my head. I received prescriptions for chocolate as a way to ‘just calm down’ and let go of some stress. This was probably well-intentioned but clearly did not address the source of my intense…
Sofia Garcia
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Alcohol and pancreatitis
Alcohol & Pancreatitis
March 24, 2021

Pancreatitis and Alcohol

The connection between pancreatitis and alcohol is widely misunderstood. Many people think that drinking alcohol causes chronic pancreatitis... This is WRONG! New studies are debunking old claims that pancreatitis is a disease of alcoholics. Alcohol alone does not directly cause chronic pancreatitis. The widespread belief that chronic pancreatitis is usually caused by alcohol abuse is harmful. Because most doctors believe that drinking is the most common cause of chronic pancreatitis: Patients don’t get the best care Children are accused of drinking Parents of young patients are accused of giving their children alcohol Light drinkers aren’t properly diagnosed after attacks because…
Sofia Garcia
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March 24, 2021

Dosing Pancreatic Enzymes

Correct dosing of pancreatic enzymes is a big challenge for patients who suffer from EPI. We've heard from patients that once they receive they are told they have EPI, they are not guided or walked through what this means for them going forward. When are they supposed to take their pills? How do they know if they're on the right dose? In light of this, we've put together a video with Dr. Steven Freedman, a leading expert in pancreas disease and cystic fibrosis. This short, 5-minute guide will answer all the aforementioned questions and more. We hope that, after watching…
Sofia Garcia
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DiagnosisWebinars: Diagnosis
March 24, 2021

Living with Pancreatitis: Navigating Your Diagnosis

Living with Pancreatitis: Navigating Your Diagnosis https://www.youtube.com/watch?v=1s0xKVDX8qY On Mission:Cure's March 10th, 2021 webinar,  Interventional Gastroenterologist and Endosonographer Dr Eli Penn of Atrium-Navicent Health System discussed best practices for patients who are searching for an accurate diagnosis that explains their gastrointestinal symptoms. Melissa Mutz, a wife, mother, and chronic pancreatitis survivor, shares her story and walks us through how to achieve an effective doctor-patient relationship. You can now view this webinar online to learn about: Pancreatitis diagnosis: how do doctors know whether your pancreas is inflamed? Which tests can you ask for? Causes of pancreatic inflammation. (Hint: it's not alcohol consumption!) Our…
Sofia Garcia
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Jobs
March 24, 2021

Summer 2021 Volunteer Internship

About Mission: Cure Mission: Cure was founded in 2017 to find effective treatments and, ultimately, a cure for pancreatitis-- an extremely painful, degenerative and costly disease. Led by Megan Golden, a leader in innovative, outcome-based financing such as “Social Impact Bonds,” and Linda Martin, a veteran technology entrepreneur, Mission: Cure is pioneering a new funding model that creates new incentives for patient outcomes. Innovation in curing disease is even more needed in the post-COVID-19 world. Job Description Position Summary Mission: Cure seeks student interns to help with this important initiative. We are looking for hard workers and creative thinkers interested…
Sofia Garcia
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Jobs
March 24, 2021

Summer 2021 Volunteer Communications Internship

About Mission: Cure Mission: Cure was founded in 2017 to find effective treatments and, ultimately, a cure for pancreatitis, an extremely painful, degenerative and costly disease. Led by Megan Golden, a leader in innovative, outcome-based financing such as “Social Impact Bonds,” and Linda Martin, a veteran technology entrepreneur, Mission: Cure is pioneering a new funding model that creates new incentives for patient outcomes. Innovation in curing disease is even more needed in the post-COVID-19 world. Job Description Position Summary This internship is an exciting opportunity for anyone interested in applying communications skills and strategies to the world of public health,…
Sofia Garcia
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