Cookie Policy Privacy Policy Skip to main content
search
Category

Blog

Patient Stories
October 2, 2020

Seeking Treatment for Chronic Pancreatitis: Laura’s Story

Laura while traveling in Wadi Rum, Jordan Stabbing Pain Leads to Acute Pancreatitis Diagnosis In December 2018, Laura Perry, a 24-year old previously-healthy law student, began experiencing abdominal pain after returning home from a trip to Mexico with her family. While in Mexico, Laura had contracted an infection. Believing that it was nothing serious, her doctor prescribed antibiotics. The antibiotics were unsuccessful in reducing the pain so Laura went to an urgent care in hopes of a more effective treatment. The urgent care doctor incorrectly diagnosed H. Pylori and prescribed more antibiotics. But, Laura’s pain intensified. She describes the pain…
Sofia Garcia
Love0
Stephen Pandol, MD, is Director of Basic and Translational Research at Cedars-Sinai Medical Center
Alcohol & Pancreatitis
June 5, 2018

Pancreatitis and Alcohol: What’s the Real Connection?

I’ve been researching and treating chronic pancreatitis for decades, so I know firsthand what a complicated disease it is and how many unknowns remain. Answers are finally beginning to emerge, but the research is still very preliminary, underscoring how much more we need to learn. It has become increasingly clear that chronic pancreatitis (CP) is caused by multiple factors. Those factors vary from patient to patient and in how they interact with each other. Stephen Pandol, MD, is Director of Basic and Translational Research at Cedars-Sinai Medical Center and Professor of Medicine, University of California Los Angeles. His career has…
Dr. Stephen Pandol
Love15
Chronic and recurrent Acute Pancreatitis Pationt Prespectives
July 26, 2018

Preliminary Results of Patient Survey and Continuing Project

As many of you may know, Mission: Cure recently launched its first patient survey to gain real-world patient perspectives on living with the disease. Although the survey is ongoing, and we ask that patients who have not completed the survey take a moment to do so, we are also excited to share some preliminary insights that we have gathered from the first 145 responses.  We are excited to present a white paper report on the results of these first responses that was shared with researchers, clinicians, and FDA authorities at the PancreasFest conference in Pittsburgh, PA earlier this week. The…
Megan Golden
Love0
Mission: Cure’s Statement on Racial Equality and Justice We at Mission: Cure stand in solidarity with the Black community, the Black Lives Matter movement, and efforts to end systemic racism. We commit to look into ourselves as individuals and as an organization and to do more to advance anti-racism in everything we do.
June 11, 2020

Mission: Cure’s Statement on Racial Equality and Justice

We at Mission: Cure are shocked and outraged by the circumstances surrounding the deaths of George Floyd, Breonna Taylor, Tony McDade, Sandra Bland, Ahmaud Arbery and countless other victims of anti-Black violence. We stand in solidarity with the Black community, the Black Lives Matter movement, and efforts to end systemic racism. We commit to addressing racial inequality whenever and wherever we encounter it. However, as white female leaders, we acknowledge the limits of our own life experiences and therefore, will seek out and listen to those who face systemic injustice on so many levels. We commit to look into ourselves…
Gabriela Gil
Love0
Pain ManagementPediatric Pancreatitis
November 21, 2019

Managing Chronic Pain in Pancreatitis

Key points: •   Chronic pain from pancreatitis takes a major toll on patients and their loved ones. •   To effectively treat chronic pancreatitis pain, we need to address the symptoms as well as the impact of pain on patients’ lives.  •   One piece of the solution is self-management, which involves education, lifestyle changes, pain coping skills, and emotional and social support. •   Computer and smartphone technologies can be used to teach self-management to patients who lack access to interdisciplinary pain facilities. •   There are self-management apps specifically for pancreatitis pain and clinical trials for children and adults to determine how…
Omar Chioua
Love0
Mission: Cure - Contribute by completing survey
July 13, 2018

Introducing Mission: Cure’s First Patient Survey

Here at Mission: Cure, we strive to bring the patients’ voices to the forefront of our work. Our mission is to cure chronic and recurrent acute pancreatitis by using an innovative financing model to incentivize research and development. We are asking for you, patients and caregivers, to take a couple of minutes to fill out our patient survey. We believe that the needs and perspectives of you - someone who lives with pancreatitis - should be placed at the center of finding cures. We want researchers to know what improvements you most want to see so that they can identify the…
Megan Golden
Love0
Dr. Asjbørn Mohr Drewes, MD, PhD
BlogBlogBlogBlogBlogBlogBlogBlogBlogPain ManagementPatient ResourcesPatient ResourcesPatient ResourcesPatient ResourcesTopics
September 27, 2018

New Guidelines for Managing the Pain of Chronic Pancreatitis

Dr. Asbjørn Mohr Drewes, MD, PhD, is a widely-recognized expert in gastroenterology and pain, especially in diseases of the pancreas and oesophagus. Acting as both a clinician and researcher, he has authored 507 peer-reviewed articles, book chapters, and reviews, and is a frequent speaker at international conferences. He is currently the Director of Mech-Sense and Center for Pancreatic Diseases at the Aalborg University Hospital in Aalborg, Denmark. Chronic pancreatitis (CP) is a poorly understood disease, to the immense frustration of patients, clinicians, and researchers. There is good news: consensus guidelines on chronic pancreatitis pain have been developed by an international…
Dr. Asbjørn Mohr Drewes
Love8
GeneticsTopicsTopicsTopics
January 11, 2019

Genetic Testing for Pancreatitis: What We Know Now

Dr. Mark Haupt, MD is the Chief Medical Officer of Ariel Precision Medicine, a company that provides digital health and genomics solutions for complex disorders, like pancreatitis. Dr. Haupt is a Pediatric Pulmonologist who has dedicated his career to helping patients with pancreatic disease through his work in academia, the pharmaceutical industry, and his current work with Ariel. As a researcher and clinician, I’m incredibly excited by advances in our understanding of pancreatitis and their potential to help pancreatitis patients. Pancreatitis patients suffer terrible pain, along with other symptoms, and are often frustrated at the lack of effective treatments. But…
Dr. Mark Haupt
Love1
Close Menu