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Pancreatitis

Shows Mission: Cure's team at PancreasFest 2019.
Clinical TrialsNewsNewsNewsRepurposing Drugs
September 5, 2019

Mission: Cure Update: PancreasFest and Progress

PancreasFest 2019 unveiled promising scientific discoveries and exciting collaboration opportunities, and Mission: Cure was there! Mission: Cure's Team at PancreasFest 2019. Big thanks to our amazing interns from Brown University and Amy Jensen who shared her story of living undiagnosed with chronic pancreatitis. Yes, PancreasFest is the name of a scientific conference held annually in Pittsburgh, PA in July where leading physicians, researchers and patient advocates share new discoveries, discuss results of the latest research and identify best practices for diagnosing and treating pancreatitis, pancreatic cancer and other pancreatic diseases. Two of Mission: Cure’s projects were featured before this highly…
Megan Golden
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BlogBlogExocrine Pancreatic Insufficiency
March 25, 2019

EPI and Pancreatic Enzymes: Expert Doctor Answers Patient Questions

Dr. Steven Freedman of Beth Israel Deaconess Medical Center and Harvard Medical School Dr. Steven Freedman, MD, Ph.D., a worldwide expert on pancreatic disease and cystic fibrosis, presented on Mission: Cure’s Pancreatitis Patient Webinar on Exocrine Pancreatic Insufficiency (EPI) and Pancreatic Enzyme Replacement Therapy (PERT). EPI is one of the symptoms of pancreatitis. For a more comprehensive overview of EPI, please read this article.  Pancreatic enzymes are a confusing but critically important part of chronic pancreatitis treatment. If you missed the webinar, you can watch it here:  We had so many questions during the webinar that we could not get…
Linda Martin
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November 6, 2020

Drug Development With a Patient Focus

Picture from: National Pancreas Foundation Pancreatitis Externally-Led Patient-Focused Drug Development Meeting Mission: Cure was one of many patient advocacy nonprofit organizations that participated in the development of the very first Voice of the Patient Report, a months-long project led by the National Pancreas Foundation. In March, during the Patient-Focused Drug Development (PFDD) meeting, Co-Founder and pancreatitis patient Eric Golden shared his experience with pancreatitis before members of the United States Food and Drug Administration (FDA). PFDD meetings put patients' experiences at the forefront and give them a voice in the drug development process. Mission: Cure's Belief in Patient-Centered Care At…
Sofia Garcia
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Nutrition
March 6, 2020

Watch Our Webinar on Nutrition for Children with Pancreatitis!

Nutrition for Children with Pancreatitis: What Should Your Child Eat? https://www.youtube.com/watch?v=xo-5qldfkC8&feature=youtu.be On Mission:Cure's March 3, 2020 webinar, Nurse Practitioner Michelle Klosterman of UCSF Benioff Children's Hospital discussed best nutrition practices for children suffering from pancreatitis. Dr. Virginia Stallings of Children's Hospital of Philadelphia explained how pancreatitis affects food absorption and growth in children and adolescents. You can now view this webinar online to learn about: Practical tips for feeding children with pancreatitis Weight gain and keeping your child on the developmental growth curve Our Webinar Speakers:  Virginia Stallings, MD, is a professor of pediatrics at the Children’s Hospital of Philadelphia (CHOP) and University of…
Gabriela Gil
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BlogTopics
January 11, 2019

Genetic Testing for Pancreatitis: What We Know Now

Dr. Mark Haupt, MD is the Chief Medical Officer of Ariel Precision Medicine, a company that provides digital health and genomics solutions for complex disorders, like pancreatitis. Dr. Haupt is a Pediatric Pulmonologist who has dedicated his career to helping patients with pancreatic disease through his work in academia, the pharmaceutical industry, and his current work with Ariel. As a researcher and clinician, I’m incredibly excited by advances in our understanding of pancreatitis and their potential to help pancreatitis patients. Pancreatitis patients suffer terrible pain, along with other symptoms, and are often frustrated at the lack of effective treatments. But…
Dr. Mark Haupt
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GeneticsGeneticsGeneticsPatient ResourcesPatient ResourcesPatient ResourcesPatient ResourcesWebinarsWebinars: Genetics
November 14, 2018

Pancreatitis and Genetics: New Science Shows Pancreatitis Likely to be Hereditary

https://www.youtube.com/watch?v=dLrEmdmgaLQ&t=5s Pancreatitis is Often Caused by Genetics In November 2018, Mission: Cure hosted a webinar for chronic and recurrent acute pancreatitis patients on new genetic discoveries related to pancreatitis. It featured presentations by Dr. David Whitcomb of the University of Pittsburgh Medical Center and Dr. Mark Haupt of Ariel Precision Medicine, experts in pancreatitis genetics. The doctors answered many questions from patients, including: Do genetics cause chronic and recurrent acute pancreatitis? Who should get genetic testing? How will research on genetics help us find a cure? Mission: Cure and its partners are using new research on genetics to find pathways…
Megan Golden
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WebinarsWebinarsWebinars: TPIAT
April 30, 2019

Will Pancreas Surgery Cure My Pancreatitis? Doctors Explain TPIAT

Mission: Cure's webinar, TPIAT: Should I Have My Pancreas Removed?, discusses pancreas surgery to reduce chronic pain from pancreatitis.  This is the fourth broadcast in Mission: Cure’s Patient and Family Webinar Series. In this webinar replay you can hear Dr. Melena Bellin of the University of Minnesota explain: Who should consider TPIAT (Total Pancreatectomy & Islet Auto-Transplantation) The selection criteria The TPIAT procedure itself The typical recovery and outcomes We then hear from Amy Jensen, a recent TPIAT patient, who eloquently shares her own TPIAT journey. The goal of this webinar was to educate chronic and recurrent acute pancreatitis patients and their…
Megan Golden
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